Hi Everyone,
Well the scan feedback was mixed. No secondaries anywhere which is great news BUT the little flakes and nodules that they found in my body cavity at the time of original diagnoses appear to be be 'waking up'. If you have been following my story since the outset you'll remember that it was these little 'nodules' that put a halt to the curative surgery in the early days.
The 'waking up' was shown by water around my liver and a funny shaped kidney. The oncologist reckons that if he zaps them early enough we could buy me some time. I can't have anymore radiotherapy so it is the chemo route. I think he would like to have started straight away but I'm too weak at present. I have the task of putting on some weight, and getting stronger before March 22nd when four rounds (four weeks each) of chemo begins. This time I'm not having Oxealpatin. This is the blighter that gave me such bad side effects last time. This time round I'm having Irinotecan (Campto) which I'm assured is as effective but kinder as far as side effects are concerned.
So...chemo.... mmmm and I had just got enough hair to spike again. Never mind! The wonderful truth that I was given 9 months of life initially and I am now in month 26! Amen.
On the food front the feeding tube is back in place and I'm getting as much 'gloop' down me as I can stand. I'm also managing to eat some things normally, swallowing is OK and the anti-nausea medication seems to be helping in the battle to keep grub down.
I'm keeping busy which really helps. People keep lecturing me on 'taking it easy' but honestly I'd go mad! I've done a mini makeover of Carys' bedroom and I'm off on a stag 'do' with some mates tonight. I shall trundle around with my feeding rucksack looking vulnerable and delicate! Perhaps I'll manage a Guinness or two - it is 'good for you' after all!
Thanks for dropping by.
Luv
Dave xx
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2 comments:
Dear Dave, Sorry to hear about the 'nodules' but glad to hear other news a bit more positive. Hope you enjoy your stag do tonight - keeping busy I am sure helps to stay positive and those grey cells working on sending out lots of positive happy vibes (which will scare off the nasty nodules!... in conjunction with the Irinotecan of course...). Glad to hear pain/nausea etc a bit better and that you are managing to eat some 'normal' food - we keep saying we'll have to have you round for dinner sometime so perhaps soon when you are eating better (what's your favourite food apart from gloop??).
Hope Carys is OK - she and Emily had a bit of a falling out yesterday over this 'wedding' thing at school - but think they've got it sorted. I keep saying to Emily to try not to take sides and be friends with everyone but she says it is hard - the tribulations of year 4!
Anyway, we are sending positive thoughts/prayers, take care,
Love Jane & co x
Well DR, as you say the results could have been worse. I definitely think keeping busy is the right thing to do and the more you do the more you will feel better about everything. Doesn't do to dwell too much on what lies ahead in the form of the chemo thing. Fingers crossed that instead of feeling so bad with it (as you did last time), this time it gives you a high, the purple hazy stuff, where everything in the garden looks rosy and soft. I can see you with flowers weaved in your 'spikey' hair, a jingly bell round your neck, softly singing "if you're going to San Francisco, be sure to wear some flowers in your hair"....oops perhaps you are too young to remember this era! I hope the guinness tastes great, my friend. Love to Florence x Big hugs x x
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